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Volume: 5
Issue: 04
Date: 10-Apr-97


Table of Contents:

I.    LYMENET: State of NJ Authorizes Attack on Tick-Borne
      Illnesses
II.   LYMENET: Readers to Newsletter: Present All Sides of Issues
III.  LYMENET: Update on NIH Chronic Lyme Study Scheduled for
      April 19
IV.   LDF: National LD Awareness Month Kick-Off on May 1
V.    LYMENET: Lyme Disease Forum at West Chester University
VI.   About The LymeNet Newsletter


Newsletter:

***********************************************************************
*                  The National Lyme Disease Network                  *
*                         LymeNet Newsletter                          *
***********************************************************************


IDX#                Volume 5 / Number 04 / 10-APR-97
IDX#                            INDEX
IDX#
IDX#  I.    LYMENET: State of NJ Authorizes Attack on Tick-Borne
IDX#        Illnesses
IDX#  II.   LYMENET: Readers to Newsletter: Present All Sides of Issues
IDX#  III.  LYMENET: Update on NIH Chronic Lyme Study Scheduled for
IDX#        April 19
IDX#  IV.   LDF: National LD Awareness Month Kick-Off on May 1
IDX#  V.    LYMENET: Lyme Disease Forum at West Chester University
IDX#  VI.   About The LymeNet Newsletter
IDX#



I.    LYMENET: State of NJ Authorizes Attack on Tick-Borne Illnesses
--------------------------------------------------------------------
Sender: Marc Gabriel <a229@lehigh.edu>
Date: April 7, 1997


New Jersey Governor Christine Todd Whitman signed last week a bill
which leverages existing mosquito control efforts in the battle to
control increasing tick infestation across the State.  The NJ Lyme
Disease and Other Tick Borne Illness Act took effect upon her
signature April 1.  


The Act, co-sponsored by Senate Majority Leader John O. Bennett (R-12)
and Senator James E. McGreevey (D-19), establishes a board charged with
overseeing progress made in the areas of Lyme disease education,
prevention, detection and diagnosis, as well as vector (tick)
management.  The bill also explicitly requests the board consider the
financial impact of Lyme disease on the residents of New Jersey.  
It noted that "studies of Lyme disease treatment have shown that the
costs associated with long-term treatment of infected persons have
often exceeded $100,000 per case and have a significant negative
social impact."  The Board will also recommend funding levels for tick
management.


The bill rests the responsibility of designating specific management
activities with the Board of Chosen Freeholders of a given county.
The language suggests existing mosquito control agencies can be used to
fight disease carrying vectors, but leaves the ultimate decision to
local government.  Kerry Fordyce, one of the founding members of the
Lyme Disease Association of New Jersey, urged residents to "ask your
Freeholders to appoint an agency to handle tick management in your
area. We need to put this bill to work."


Other Lyme activists were similarly upbeat.  Steven Gottschalk, an
organizing member of AOLyme on America On-Line, noted the bill was
"extremely important, not only in its ability to curtail the Lyme
epidemic by cutting off the main source, ticks, but also in its strong
language, which makes clear the serious nature of Lyme disease.
That the bill was passed unanimously by both houses and signed by the
Governor is truly impressive."


The full text of the bill can be found on the LymeNet Web Server at:
                      http://www.lymenet.org/



=====*=====


II.   LYMENET: Readers to Newsletter: Present All Sides of Issues
-----------------------------------------------------------------
Sender: Archives of Microbiology <Karen.Brune>


I, for one, applaud your making the ECAL URL available to readers of
LymeNet [Newsletter vol#5, #03] for a personal reason and mostly for
a general one.


My personal reason is that I contracted Lyme disease in Germany, where
I live, and was treated in Germany. The treatment was very conservative
compared to the treatments advocated on the LymeNet; therefore, I was
very interested in learning what the general treatment programs are
throughout Europe. (I was a little disappointed that the ECAL had
minimal information on the general treatments in the different
countries, but that is another point).  In any case, ECAL only
provided information as things ARE.  Any of your readers in Europe
(and hopefully those in the US) should be interested in how Lyme
Disease is treated throughout the world, regardless of whether they
find the treatment correct or incorrect.


Most importantly, however, I find it a necessity that people be
informed of ALL sides of an issue, regardless of which side the
individual person (or news group) stands.  To be UNINFORMED of all
sides is the return to the Dark Side, or rather, the Dark Ages.
Each individual should be able to form their own opinion after
receiving all the facts. To supply only information that supports
one side is exceedingly dangerous, and can lead to misconceptions
and very narrow ways of thinking.  In most things, there is no
'absolute truth', and to think that there is only one 'right way' and
to refuse to hear the 'wrong way' will only lead us backward in time
-- much farther back than 15 years!  How can people ever seriously and
knowledgeably discuss anything if the two (or more) sides know nothing
of the other side(s)?



=====*=====


III.  LYMENET: Update on NIH Chronic Lyme Study Scheduled for April 19
----------------------------------------------------------------------
Sender: Marc Gabriel <a229@lehigh.edu>
Date: April 8, 1997


A briefing on the planned protocol for the NIH extramural chronic
Lyme study will take place on April 19 at 12:30pm at the Katonah
Presbyterian Church in Katonah, NY.  The presentation will be made
by Carl Brenner, Contributing Editor of the LymeNet Newsletter and
a member of NIAID's Advisory Committee for Clinical Studies on
Chronic Lyme Disease.  The meeting is sponsored by the Lyme Disease
Coalition of New York / Connecticut.


The final planned versions of the protocols for the extramural chronic
Lyme study have now been completed and abridged versions will soon be
posted on the NIAID web page.  There is still a possibility that the
study plans will be modified slightly at some point down the road;
however, any revisions at this stage are likely to be minor.


Brenner anticipates the event will be informal, and will encourage
questions and observations.  He plans to relay these thoughts to the
investigators and to the relevant officials at the National Institute
of Allergy and Infectious Diseases (NIAID).  


For those who will be unable to attend the meeting, a tape of the
proceedings will be made and copies of the transcript available by
mail.  Directions to the church and the details of the transcript
offer will be announced when available on the LymeNet Web Server at:
                     http://www.lymenet.org/



=====*=====


IV.   LDF: National LD Awareness Month Kick-Off on May 1
--------------------------------------------------------
Sender: The Lyme Disease Foundation <lymefnd@aol.com>


A press conference (Senate Swamp, Washington DC, 11:30am) kicks-off
May as National Lyme Disease Awareness Month.  The subsequent
"Wake Up Washington Congressional Educational Meetings" (1pm) will
offer you an opportunity to let your representatives know what Lyme
disease has done to your family and friends.  Contact the Lyme
Disease Foundation for transportation information.



=====*=====


V.    LYMENET: Lyme Disease Forum at West Chester University
------------------------------------------------------------
Sender: Dave Williams <DGowerW@aol.com>


The Lions Club 14-P Lyme Disease Committee will hold an afternoon
session featuring professionals in the field of treatment and
prevention of Lyme Disease on May 5th, 1997 from 4:00 to 8:30 PM
in the Sykes Union Building of West Chester University in West
Chester, PA.  The evening session, beginning at 7 PM, will feature
a public forum with professionals responding to frequently asked
questions about Lyme Disease.


A dinner is scheduled from 5:30 to 6:45 PM.  Cost is $15.00.

Please send all correspondence to:
 Lions Fight Lyme
 PO Box 2018
 West Chester, PA.  19380


For further information, call Toll-Free:  1-888-596-3147  (LYME14P)


=====*=====


VI.   ABOUT THE LYMENET NEWSLETTER
----------------------------------
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LymeNet - The Internet Lyme Disease Information Source
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Editor-in-Chief: Marc C. Gabriel <a229@Lehigh.EDU>
           FAX (for contributions ONLY): 908-789-0028
Contributing Editors: Carl Brenner <cbrenner@postoffice.ptd.net>
                     John Setel O'Donnell <jod@Equator.com>
                     Frank Demarest <76116.2065@CompuServe.com>
Advisors: Carol-Jane Stolow, Director <carol_stolow@lymenet.org>

         William S. Stolow, President <bill_stolow@lymenet.org>
         The Lyme Disease Network of New Jersey
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